Moldovan cabinet approves national programme on rare diseases

Chisinau, 6 March /MOLDPRES/ - The government, at a today’s meeting, approved the national programme on rare diseases for the 2024-2028 years.   

The document is aimed at ensuring a fair access to the early diagnosis, treatment and rehabilitation services for all people with rare diseases, as  well as at developing the international cooperation in research, so that, till 2028, an integrated system of medical services for rare diseases should be created, according to the European standards.   

The carrying out of the programme will extend by 25 per cent the covering of the specific treatment with medicines and of the services of rehabilitation for more rare diseases, as compared to the 2023 year. It is about the organic aciduria, familial Mediterranean fever, hemophilia, cystic fibrosis.    

At the same time, the document sees the increase by 25 per cent in the number of rare diseases detected till 2028. Also, the programme’s approval will contribute to a 25-per cent growth till 2028 of the number of medicines used for the treatment of rare diseases and cutting the rate of premature death caused by these diseases.  

Presently, the following rare diseases can be practically fully diagnosed and monitored: Phenylketonuria, Duchenne muscular dystrophy and the Wilson-Konovalov Disease. The spectrum of diagnosis and monitoring of about 30 diseases is to be extended.  

According to statistics, about 2,500 patients with rare diseases are registered in Moldova, of whom more than a half are children.